Science for patient advocates
A study week taking patient advocates from bedside to bench
Members of ICPV are actively involved in many areas of research. To facilitate and enhance our role in these activities, members aim to understand the fundamentals of cancer, study design and current areas of controversy and research.
Much of this is gained through experience. However, working with the internationally renowned Barts Cancer Institute we have developed a tailor-made course which provides a week-long intensive training in basic cancer biology, introduction to research terminology and study design, and critical evaluation of research proposals and scientific papers. We have called this course VOICE (Vision On Information, Confidence and Engagement) Science for patient advocates. This course is unique, the only course of this type in the UK.
VOICE aims to give participants:
- An introduction to basic cancer biology
This will include sessions on what cancer is, how it is caused, how it develops and how it is detected and treated. Course participants will spend time in the research laboratories to help them to build their understanding.
- An introduction to epidemiology, statistics and reading scientific papers
This will include sessions on on understanding statistics, understanding risk, epidemiology and how to read and interpret scientific papers.
We hope that this course will give participants increased confidence to become more effectively involved in cancer research as patient advocates.
Poster presented at NCRI 2014
ICPV NCRI 2014.pdf
Adobe Acrobat document [363.5 KB]
For information on forthcoming courses please contact us.
A snapsot video of the the 2016 course is now available on YouTube VOICE2016
At the BACR/ECMC conference in July Maggie Wilcox and Mairead Mackenzie were persuaded to speak to the camera. Maggie gave a background to ICPV and our aims and objectives. While Mairead focused on her specific interests and activities. To view follow the links below.
July 2016 Conferences
ICPV members were busy this week with two conferences. The BACR/ECMC Joint Meeting on Therapeutic Interventions for Cancer Prevention was held in Bristol July18-19. The UK Breast Cancer Research Symposium was held in London from July 22-23. Click here for more information.
UK Therapeutic Cancer Prevention Network (UKTCPN)
An update from this new group was presented to the ECMC Annual Network Meeting in May 2016. Click here to download and read.
The ICPV Science for Advocates Course will be hosted by Warwick CTU from 19th - 23rd September. See the VOICE pages for more information.
The Voice, Winter 2015-2016
The latest ICPV newsletter is now available. It has reviews of members activities, meeting attended and papers published. Go to the ICPV Publications page to download.
Call for immediate change to European Paediatric Medicine Regulation to save more lives of children and teens with cancer.
A few basic changes to European Law could speed up access to newer, kinder and potentially better drugs for more children and teenagers with cancer. Click to Sign the petition
Two years on from the start pioneering TRACERx lung cancer study. Click here For the latest news and patient views on this study.
NCRI Conference 2015, Liverpool
ICPV members will be joining cancer researchers from 1-4 Nov, 2015. Click here for more information.
ICPV Summer School 2015
Qualitative Research Training Course at Warwick. Click here for a review of the session.
NCIN, Belfast, June 2015
Several ICPV members attended and spoke at this years conference. Click here for more.
AACR Conference, Philadelphia, April 2015
ICPV Member Pat Fairbrother joined US advocates at this year's conference. Read her review of the event here.
Cancer Drugs Fund
Today (19 Jan 2015) The Telegraph has published a letter from ICPV & fourteen other charities on the current CDF situation. Go to our Facebook or Twitter page for Telelgraph weblink or click below for the letter.