Newsletter - The Voice

As ICPV grows we thought the idea of newsletter would help keep members up-to-date with all our activities. 

We need a regular supply of material if this is to be successful. It does not have to be related to ICPV activity and it would be good to receive feedback from members’ involvement in other groups, recommendations
regarding articles, events attended, opportunities for promoting ICPV etc.

We hope to produce this quarterly but will start with bi-annualy.

The Voice Summer 2015.pdf
Adobe Acrobat document [4.1 MB]
The Voice Dec 2014.pdf
Adobe Acrobat document [1.0 MB]

We have recently produced our second review. This report covers our achievments since our first review was published in 2011.

We hope it will give you a more indepth knowledge to who ICPV are, what ICPV do and why we do it.


ICPV Review 2014
Adobe Acrobat document [3.8 MB]
ICPV Review 2011
Adobe Acrobat document [2.4 MB]

PPI Leaflets


We have prepared this leaflet encouraging patients to ask about clinical trials, donation of tissue for research and involvement in local cancer network service development and research read more


Members' Publications


Our members occasional contribute to journal publications read more


NCRI Conference 2011


For the NCRI Conference in Liverpool in November 2011 we had an abstract accepted "Independent Cancer Patients' Voice - speaking clearly and being heard" and presented a poster "Continuing the Conversation"             

Independent Cancer Patients' Voice - speaking clearly and being heard
Abstract NCRI 2011.pdf
Adobe Acrobat document [34.6 KB]
Continuing the Conversation
Adobe Acrobat document [1.5 MB]


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The Voice, Issue 2, Summer 2015

The latest ICPV newsletter is now available. It has reviews of members activities, meeting attended and papers published. Go to the ICPV Publications page to download.

ICPV Summer School 2015

Qualitative Research Training Course at Warwick. Click here for a review of the session.

NCIN, Belfast, June 2015

Several ICPV members attended and spoke at this years conference. Click here for more.

AACR Conference, Philadelphia, April 2015

ICPV Member Pat Fairbrother joined US advocates at this year's conference. Read her review of the event here.

Multiple Biopsies Forum, Feb 2015

ICPV joined with the ICR to discuss the issues around the increasing need for multiple biospies in research. Click here for the summary of the meeting.

VOICE 2015

The ICPV VOICE course will be   held at Barts Cancer Institute from 1-5 Sept.  Click here for information and contact details.

Cancer Drugs Fund

Today (19 Jan 2015) The Telegraph has published a letter from ICPV & fourteen other charities on the current CDF situation. Go to our Facebook or Twitter page for Telelgraph weblink or click below for the letter.

Letter to Telegraph.pdf
Adobe Acrobat document [809.6 KB]

ICPV Review 2014

Our latest review is now available. Click here to read more.

ASCO, Boston, 2014

Prof Lesley Fallowfield presented a poster for the AVALPROFS study ASCO. The study was well received at the event especially by patients. Click here to see the poster and find our more about the study.

ICPV Summer School 2014

The ICPV summer school was held in Brighton on Friday 4th and Saturday 5th July 2014.  

Click here for speaker presentations and audience reviews.

James Lind Alliance & NIAA - Survey

The Anaesthesia and Perioperative Care Priority Setting Partnership aims to identify the most important research areas to improve the physical and mental well-being of patients attending hospital for any operation or procedure requiring any type of anaesthetic. A short online survey (5-10 minutes) is open until the end of July for patients, carers and clinicians to contribute their ideas about unanswered research questions related to this topic. It is a unique opportunity to have your say and participate in this important and wide-ranging partnership that will have a real impact on research in hospital care. For further information and access to the survey please go to:

Genomics England, 24 March 2014

A group of patients advocates from ICPV, NCRI, Cancer52, and Cancer of Unknown Primary recently held a discussion with Genomics England to help clarify the current developments and look at ways of raising awareness of the need for tissue and data. A summary of the discussion can be downloaded here.

ABPI Conference, 10 April 2014

For the first time ICPV had a stand at the Association of the British Pharmaceutical Industry (ABPI) conference. This was a great networking opportunity and a chance to promote ICPV.

ICPV Members Day, 4 April 2014

The 2014 members day was held at the Queen Elizabeth Hospital Birmingham. We had talks a number of new trials and studied and an opportunity for new members to discover what ICPV do and for old members to exchange news. Click here for more information. 

EORTC Cancer Survivorship Summit, Jan 2014

CSG and ICPV member Carolyn Morris attended this years event in Brussels. Click here for more information and to read her report.

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