Members' Publications

Our members have also contributed to journal publications over the years. The list below gives a flavour of the topics covered.

The Value of Patient and Public Involvement in Trial Design and Development, Clinical Oncology, 2015
Authors - S. Gasson, J. Bliss, M. Jamal-Hanjani, M. Krebs, C. Swanton, M. Wilcox
Gasson et al - PPI editorial 2015.pdf
Adobe Acrobat document [150.9 KB]
The AVALPROFS study Assessing the VALue of PROgression Free Survival
Poster presented at British Psychosocial Oncology Society (BPOS) 2015
BPOS poster 2015.pdf
Adobe Acrobat document [257.5 KB]
Comfort Blanket or Clinical Need? The Role of Follow-up for Cancer Survivors, Clinical Oncology, 26, 10, 619–621, Oct 2014
Authors - S. Gasson, M. MacKenzie, A. Morgan, C. Morris, K. Randle, H. Stobart, L. Turner, M. Wilcox, Members of the Independent Cancer Patients' Voice (ICPV) and the Consumer Liaison Group (CLG)
ClinOnc,2014,26,10.pdf
Adobe Acrobat document [154.3 KB]
Chemo- and Targeted Therapy for Women with HER2 Negative (or unknown) Advanced Breast Cancer: American Society of Clinical Oncology Clinical Practice Guideline, JCO, September 10, 2014, 32 (26)
Authors include ICPV Member Maggie Wilcox.
JCO-2014-Partridge-JCO.2014.56.7479.pdf
Adobe Acrobat document [191.5 KB]
Tracking Genomic Cancer Evolution for Precision Medicine: The Lung TRACERx Study, PLoS Biol. 2014 Jul 8;12(7)
Authors include ICPV members Tom Haswell, Mairead MacKenzie and Maggie Wilcox
PloS-2014.pdf
Adobe Acrobat document [700.8 KB]
Involving patients/donors in biobanking: get on board
CCB Lay Members Maggie Wilcox and Derek Stewart provide their thoughts on the current situation in patient involvement in biobanking
CCB_Newsletter_Dec2012_patient+involveme[...]
Adobe Acrobat document [373.7 KB]

Is it me or is it hot in here? A plea for more research into hot flushes

Morgan A, Fenlon DR; National Cancer Research Institute Clinical Studies Group Breast Cancer Working Party on Symptom Management

Clin. Oncol. 2013, vol. 25, pp 681-683

NCRI-CCB-Breast Cancer Campaign - Data Standard
Poster presented at NCIN 2013,
Philip Quinlan & CCB Working Group 3 (inc Helen Bulbeck & Mairead MacKenzie)
NCIN2013 - Data standard poster.pdf
Adobe Acrobat document [761.9 KB]
Always Putting Patients First
ICPV members, Maggie, April, Mairead, Adrienne & Jacqui explain their work with the Tissue Bank
PinkScienceSummer2013-TissueBank.pdf
Adobe Acrobat document [1.1 MB]
Investment Biobanking-increased returns from tissue banks, Val Spiers & Adrienne Morgan
Tissue Bank,NatureClinOnc2013.pdf
Adobe Acrobat document [110.2 KB]
Selecting Breast Cancer Patients for Chemotherapy: The Opening of the UK OPTIMA Trial, J Bartlett et al (with Adrienne Morgan)
OPTIMA launch 2012 ClinOncol.pdf
Adobe Acrobat document [437.3 KB]
Time for a low-risk DCIS trial: harnessing public and patient involvement, Leslie Fallowfield, Adele Francis, Susan Catt, Mairead MacKenzie, Valeries Jenkins
Lancet_Nov_2012_Time_for_a_DCIS_Trial.pd[...]
Adobe Acrobat document [1.3 MB]
QUEST Trial, Breast Cancer Care Nursing Network News, June 2012, Jane Nicholson and Mairead MacKenzie
QUEST ARTICLE-Breast Cancer Care-June 20[...]
Adobe Acrobat document [1.6 MB]
Endocrine Therapy, New Biologicals, and New Study Designs for Presurgical Studies in Breast Cancer (with Maggie Wilcox)
J Natl Cancer Inst Monogr-2011-Dowsett-1[...]
Adobe Acrobat document [394.3 KB]

Targeted intraoperative radiotherapy versus whole breast radiotherapy for breast cancer (TARGIT-A): An international, prospective, randomised, noninferiority phase 3 trial

JS Vaidya et al (including A Matthews)

Lancet Vol 376 p91-102, 2011

 

Service User Involvement In Cancer Care: The impact on Service Users

C Morris, P Cotterell, P Beresford & G Harlow Health

Expectations Volume 14, Issue 2, pages 159–169, June 2011

 

Opinion: Patient Engagement

A Morgan

Cancer Nursing Practice Vol 10 No 6 p9 2011

 

The capacity, impact and challenge of service users’ experiential knowledge

P Cotterell and C Morris

chapter in Critical Perspectives on User Involvement. Ed. M Barnes and P Cotterell, The Policy Press, in press

 

It’s Good To Talk

A comparison of a telephone helpline and website for cancer information.

R Hardyman, P Hardy, J Brody, R Stephens

Journal of Patient Education and Counselling, Vol 57, 2005

 

 

 

 

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News

VOICE 2016

A snapsot video of the the 2016 course is now available on YouTube VOICE2016

eCancer Videos

At the BACR/ECMC conference in July Maggie Wilcox and Mairead Mackenzie were persuaded to speak to the camera. Maggie gave a background to ICPV and our aims and objectives. While Mairead focused on her specific interests and activities. To view follow the links below.

Maggie Wilcox

Mairead MacKenzie

July 2016 Conferences

ICPV members were busy this week with two conferences. The BACR/ECMC Joint Meeting on Therapeutic Interventions for Cancer Prevention was held in Bristol July18-19. The UK Breast Cancer Research Symposium was held in London from July 22-23. Click here for more information.

UK Therapeutic Cancer Prevention Network (UKTCPN)

An update from this new group was presented to the ECMC Annual Network Meeting in May 2016. Click here to download and read. 

Voice 2016

The ICPV Science for Advocates Course will be hosted by Warwick CTU from 19th - 23rd September. See the VOICE pages for more information.

The Voice, Winter 2015-2016

The latest ICPV newsletter is now available. It has reviews of members activities, meeting attended and papers published. Go to the ICPV Publications page to download.

UNITE2CURE

Call for immediate change to European Paediatric Medicine Regulation to save more lives of children and teens with cancer.
A few basic changes to European Law could speed up access to newer, kinder and potentially better drugs for more children and teenagers with cancer. Click to Sign the petition 

TRACERx

Two years on from the start pioneering TRACERx lung cancer study. Click here For the latest news and patient views on this study. 

NCRI Conference 2015, Liverpool

ICPV members will be joining cancer researchers from 1-4 Nov, 2015. Click here for more information.

ICPV Summer School 2015

Qualitative Research Training Course at Warwick. Click here for a review of the session.

NCIN, Belfast, June 2015

Several ICPV members attended and spoke at this years conference. Click here for more.

AACR Conference, Philadelphia, April 2015

ICPV Member Pat Fairbrother joined US advocates at this year's conference. Read her review of the event here.

Cancer Drugs Fund

Today (19 Jan 2015) The Telegraph has published a letter from ICPV & fourteen other charities on the current CDF situation. Go to our Facebook or Twitter page for Telelgraph weblink or click below for the letter.

Letter to Telegraph.pdf
Adobe Acrobat document [809.6 KB]

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