Publications

Newsletter - The Voice

As ICPV grows we thought the idea of newsletter would help keep members up-to-date with all our activities. 

We need a regular supply of material if this is to be successful. It does not have to be related to ICPV activity and it would be good to receive feedback from members’ involvement in other groups, recommendations
regarding articles, events attended, opportunities for promoting ICPV etc.

We hope to produce this quarterly but will start with bi-annualy.

The Voice Winter 2015-2016.pdf
Adobe Acrobat document [6.2 MB]
The Voice Summer 2015.pdf
Adobe Acrobat document [4.1 MB]
The Voice Dec 2014.pdf
Adobe Acrobat document [1.0 MB]

We have recently produced our second review. This report covers our achievments since our first review was published in 2011.

We hope it will give you a more indepth knowledge to who ICPV are, what ICPV do and why we do it.

 

ICPV Review 2014
ICPV_Report_2014.pdf
Adobe Acrobat document [3.8 MB]
ICPV Review 2011
ICPV_Report.pdf
Adobe Acrobat document [2.4 MB]

PPI Leaflets

 

We have prepared this leaflet encouraging patients to ask about clinical trials, donation of tissue for research and involvement in local cancer network service development and research read more

 

Members' Publications

 

Our members occasional contribute to journal publications read more

 

NCRI Conference 2011

 

For the NCRI Conference in Liverpool in November 2011 we had an abstract accepted "Independent Cancer Patients' Voice - speaking clearly and being heard" and presented a poster "Continuing the Conversation"             

Abstract
Independent Cancer Patients' Voice - speaking clearly and being heard
Abstract NCRI 2011.pdf
Adobe Acrobat document [34.6 KB]
Poster
Continuing the Conversation
ICPV_NCRI_Poster_28Oct11.pdf
Adobe Acrobat document [1.5 MB]

 

AllTrials logo

News

VOICE 2016

A snapsot video of the the 2016 course is now available on YouTube VOICE2016

eCancer Videos

At the BACR/ECMC conference in July Maggie Wilcox and Mairead Mackenzie were persuaded to speak to the camera. Maggie gave a background to ICPV and our aims and objectives. While Mairead focused on her specific interests and activities. To view follow the links below.

Maggie Wilcox

Mairead MacKenzie

July 2016 Conferences

ICPV members were busy this week with two conferences. The BACR/ECMC Joint Meeting on Therapeutic Interventions for Cancer Prevention was held in Bristol July18-19. The UK Breast Cancer Research Symposium was held in London from July 22-23. Click here for more information.

UK Therapeutic Cancer Prevention Network (UKTCPN)

An update from this new group was presented to the ECMC Annual Network Meeting in May 2016. Click here to download and read. 

Voice 2016

The ICPV Science for Advocates Course will be hosted by Warwick CTU from 19th - 23rd September. See the VOICE pages for more information.

The Voice, Winter 2015-2016

The latest ICPV newsletter is now available. It has reviews of members activities, meeting attended and papers published. Go to the ICPV Publications page to download.

UNITE2CURE

Call for immediate change to European Paediatric Medicine Regulation to save more lives of children and teens with cancer.
A few basic changes to European Law could speed up access to newer, kinder and potentially better drugs for more children and teenagers with cancer. Click to Sign the petition 

TRACERx

Two years on from the start pioneering TRACERx lung cancer study. Click here For the latest news and patient views on this study. 

NCRI Conference 2015, Liverpool

ICPV members will be joining cancer researchers from 1-4 Nov, 2015. Click here for more information.

ICPV Summer School 2015

Qualitative Research Training Course at Warwick. Click here for a review of the session.

NCIN, Belfast, June 2015

Several ICPV members attended and spoke at this years conference. Click here for more.

AACR Conference, Philadelphia, April 2015

ICPV Member Pat Fairbrother joined US advocates at this year's conference. Read her review of the event here.

Cancer Drugs Fund

Today (19 Jan 2015) The Telegraph has published a letter from ICPV & fourteen other charities on the current CDF situation. Go to our Facebook or Twitter page for Telelgraph weblink or click below for the letter.

Letter to Telegraph.pdf
Adobe Acrobat document [809.6 KB]

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