A study looking at developing a new way to report side effects of treatment online from home
This study is looking at developing a new way for people to report any side effects of treatment online from home.
All cancer treatments have side effects. The researchers want to develop a new way for people to report any side effects they may have. The new way is for people to use their computer at home to go onto a website, fill in an electronic questionnaire and receive information about how to manage the side effect. If the side effect is serious the website is set up to alert a member of the hospital staff and they will contact the person. All the information will be stored in the person’s hospital records so that the hospital staff can see it.
The researchers hope that this will allow people to manage their side effects better and help doctors get a better picture of the side effects people have. They also hope it will help people get medical attention for severe side effects when needed.
The first step is to develop the questionnaire for people to use on the website. The researchers will ask people having treatment at the Bexley Wing, St James’ University Hospital Leeds to complete the questionnaire. They will interview them afterwards to find out what they think about it.
The aims of this study include finding out
- If the questionnaire is understandable
- How well the questions relate to people’s experience
- How easy it is to complete
For more information go to http://cancerhelp.cancerresearchuk.org/trials/trials-search/
A snapsot video of the the 2016 course is now available on YouTube VOICE2016
At the BACR/ECMC conference in July Maggie Wilcox and Mairead Mackenzie were persuaded to speak to the camera. Maggie gave a background to ICPV and our aims and objectives. While Mairead focused on her specific interests and activities. To view follow the links below.
July 2016 Conferences
ICPV members were busy this week with two conferences. The BACR/ECMC Joint Meeting on Therapeutic Interventions for Cancer Prevention was held in Bristol July18-19. The UK Breast Cancer Research Symposium was held in London from July 22-23. Click here for more information.
UK Therapeutic Cancer Prevention Network (UKTCPN)
An update from this new group was presented to the ECMC Annual Network Meeting in May 2016. Click here to download and read.
The ICPV Science for Advocates Course will be hosted by Warwick CTU from 19th - 23rd September. See the VOICE pages for more information.
The Voice, Winter 2015-2016
The latest ICPV newsletter is now available. It has reviews of members activities, meeting attended and papers published. Go to the ICPV Publications page to download.
Call for immediate change to European Paediatric Medicine Regulation to save more lives of children and teens with cancer.
A few basic changes to European Law could speed up access to newer, kinder and potentially better drugs for more children and teenagers with cancer. Click to Sign the petition
Two years on from the start pioneering TRACERx lung cancer study. Click here For the latest news and patient views on this study.
NCRI Conference 2015, Liverpool
ICPV members will be joining cancer researchers from 1-4 Nov, 2015. Click here for more information.
ICPV Summer School 2015
Qualitative Research Training Course at Warwick. Click here for a review of the session.
NCIN, Belfast, June 2015
Several ICPV members attended and spoke at this years conference. Click here for more.
AACR Conference, Philadelphia, April 2015
ICPV Member Pat Fairbrother joined US advocates at this year's conference. Read her review of the event here.
Cancer Drugs Fund
Today (19 Jan 2015) The Telegraph has published a letter from ICPV & fourteen other charities on the current CDF situation. Go to our Facebook or Twitter page for Telelgraph weblink or click below for the letter.