Clinical Trials & Research

Our members are involved in the design and running of a number of clinical studies, helping to ensure that they are targeted effectively. We work as advocates at a strategic level with clinicians and clinical researchers in order to improve clinical research and outcomes for all cancer patients.

We get involved in many different ways. For some studies, we input into the very earliest stages of trial development, contributing to the development of funding proposals. We read and comment on trial protocols and on patient information materials to make it more likely that patient will enrol. Our members sit on the steering committees of many active trials to ensure that the patient perspective is considered.

In recent years our members collaborated on a wide range of studies, including: OPTIMA, a new clinical study that should ultimately reduce the amount of chemotherapy given to breast cancer patients; IMPORT HIGH & LOW (two trials looking at different ways of giving radiotherapy to high- and low-risk breast cancer patients ); POETIC ( a trial looking at whether having hormone therapy before and after surgery improves the outlook for post-menopausal women with breast cancer); and iBREAST (a trial seeking to determine whether innovative alternative follow up methods are equivalent to traditional specialist hospital-based follow-up in terms of survival and patient perception of living with cancer).

We have supported and continue to work with the Breast Cancer Campaign’s tissue bank board of management and tissue access committee.


Please look at the links on the left to see a sample current trials (both in development and running) that ICPV has at least one member on the team. Further information on our activities is available in our review which can be found on the publications page.

For more information on trials and organisations ICPV collaborates with please download our latest activity report.
ICPV Activity 2013.pdf
Adobe Acrobat document [134.0 KB]


AllTrials logo


VOICE 2016

A snapsot video of the the 2016 course is now available on YouTube VOICE2016

eCancer Videos

At the BACR/ECMC conference in July Maggie Wilcox and Mairead Mackenzie were persuaded to speak to the camera. Maggie gave a background to ICPV and our aims and objectives. While Mairead focused on her specific interests and activities. To view follow the links below.

Maggie Wilcox

Mairead MacKenzie

July 2016 Conferences

ICPV members were busy this week with two conferences. The BACR/ECMC Joint Meeting on Therapeutic Interventions for Cancer Prevention was held in Bristol July18-19. The UK Breast Cancer Research Symposium was held in London from July 22-23. Click here for more information.

UK Therapeutic Cancer Prevention Network (UKTCPN)

An update from this new group was presented to the ECMC Annual Network Meeting in May 2016. Click here to download and read. 

Voice 2016

The ICPV Science for Advocates Course will be hosted by Warwick CTU from 19th - 23rd September. See the VOICE pages for more information.

The Voice, Winter 2015-2016

The latest ICPV newsletter is now available. It has reviews of members activities, meeting attended and papers published. Go to the ICPV Publications page to download.


Call for immediate change to European Paediatric Medicine Regulation to save more lives of children and teens with cancer.
A few basic changes to European Law could speed up access to newer, kinder and potentially better drugs for more children and teenagers with cancer. Click to Sign the petition 


Two years on from the start pioneering TRACERx lung cancer study. Click here For the latest news and patient views on this study. 

NCRI Conference 2015, Liverpool

ICPV members will be joining cancer researchers from 1-4 Nov, 2015. Click here for more information.

ICPV Summer School 2015

Qualitative Research Training Course at Warwick. Click here for a review of the session.

NCIN, Belfast, June 2015

Several ICPV members attended and spoke at this years conference. Click here for more.

AACR Conference, Philadelphia, April 2015

ICPV Member Pat Fairbrother joined US advocates at this year's conference. Read her review of the event here.

Cancer Drugs Fund

Today (19 Jan 2015) The Telegraph has published a letter from ICPV & fourteen other charities on the current CDF situation. Go to our Facebook or Twitter page for Telelgraph weblink or click below for the letter.

Letter to Telegraph.pdf
Adobe Acrobat document [809.6 KB]

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